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This blog is about an inner life, the confusing, strange, constantly changing whirlpool of ideas behind the eyes. It is intensely private and difficult to articulate. I like to share and read others thoughts because it clears the air , refreshes me, helps define my boundaries and this blog is my contribution

Context

is it just me or is The Big C no longer cancer, which I always found incredibly annoying anyway: the illness hierarchy! the adverts; mothers on the warpath in pink t-shirts showing the kids how you beat up your opponents, surely not the playground motto I hope, for the innocent parent who even suggested thatContinue reading “Context”

12 Years a Chronic

Twelve new projects I did to stop chronic illness overwhelm, ennui, deterioration. #1 Foundation in Art and Design, Camberwell College of Art, full of young people and me super ill, really didn’t cope well. # 2 Complementary Medicine Practitioner (Swedish massage) In deepest Kent, Snodland…..they all thought I was right up my own arse, properContinue reading “12 Years a Chronic”

Stay In

and so it begins, my personal experience of life now writ large. Stay in, be aware of catching any germs. Instead of being a voluntary outcast, the lonely other, I am the experienced traveller in these troubling times, an expert in overcoming whatever comes @ home. Its been an accelerated learning curve for most, IContinue reading “Stay In”

# No.1 Reflections again

So where do we go from here? After a couple of months of blogging (as predicted) I’ve reached the end of my long moan about the hard times, difficulties and challenges, and apart from banging on about my domestic trouble and strife I’m going to have to find the reason I’m doing this again. AtContinue reading “# No.1 Reflections again”

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Hi, my name is Julia Assad, I have a lung disability, preventing adequate oxygen to be absorbed into my blood stream. I am vulnerable and weak after even the smallest exertion. Its degenerative and recently I was taken off the Live Lung Transplant list after 3 years as I am now too ill for such stuff. I think its fair to say life can be hard, for everyone, my disabilities create situations that I am excluded from, and others that only I can access. This is true of any one. And like the child learning to walk we accommodate the pace. I have 24/7 oxygen tube in my nose and have to carry a 7kg oxygen tank if I go out, which I do. In this blog I pull a part the thread of my life and illness, and see, on reflection “why ain’t this bitch dead already”

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